So ya, I came on here to fix my website and realized it’s been way too long since I’ve made a post.. way, way too long!!
I’ve found it much easier and convenient to make a post up on instagram (@t1ddad) to keep my followers updated on what’s going on ‘in the moment’ as we deal with this 24/7/365 disease.
I have a lot of thoughts in my head.. trust me.. many you probably want to hear, many you do not 😉
I want to share more, I want to give back more, I want to help those who were or are in the same situation as myself, but there is only so much day to stretch life into and I have to prioritize to make sure my health and the health & happiness of my family comes first..
That being said, you will hear from me more here.. there are things I do truly want to share to help make your life better, to give you tips, tricks, hacks and support to being a parent of a child with T1d a little bit easier and know that you are not alone in all of this..
For those who don’t know. My name is Chris. I’m the father of a 10yr old daughter with T1d and am her primary caregiver while also taking care of my wife who is struggling with severe chronic pain from fibromyalgia, my two other kids and a house that never seems to sleep all while running my own business from home so that I have the flexibility to do all this.. Oh, and every once and a while I sleep!
In the 6.5 years since diagnosis we have gone from MDI (Multiple Daily injections) to the Medtronic pump and recently switched to the Tandem T:Slim insulin pump. We have also been using the Dexcom G4 CGM (Continuous Glucose Monitor) and recently upgraded to the G5 as it integrates with the T:Slim pump. There are many reasons we decided to switch pumps, but the biggest ones include CGM integration, software updates (not having to wait 5 yrs for the next model for new features) & ease of use for my daughter.
What do I want to share??? Some days I’m frustrated, as I’m sure you are by the lack of information, or conflicting information.. by Doctors (who are amazing by the way) that just don’t know what it’s like to live the day-in and day-out of type 1 diabetes as a parent or caregiver… Sometimes I’m frustrated by stereotypes of dads as being the sideline caregiver when I see and am connected with quite a few amazing fathers who’s role it is to care for their T1D Kid..
What’s Next… I’m excited for the next year… This year has been quite the journey of growth, margin, knowing when to say yes and when to say no.. I’m really looking forward to 2020.. I will be turning 40, I will be celebrating our 20th wedding anniversary and I look forward to continuing to serve and share with all of you..
I have no clue how frequently I will end up sharing.. and quite honestly I think it will be more authentic and real if I only share when I have something to say and not when I have a deadline.. but stay tuned.. I will be back 😉