It’s been a while since I’ve written and there has been so much going on since the last time I wrote. I hope to get more frequent again and catch up with the last few months of our lives, but in the mean time I just wanted to brag about my daughter. She’s my Superhero. Diabetes is a part of her life, but it’s not what defines her.
I found this interview from just last week from a parent out in British Columbia. Very well spoken and communicated well the issues related to young children in schools and the importance of having proper care in order to facilitate a positive learning environment!
(Sorry the CBC embed code won’t work on iPhones)
I feel bad for families who don’t have medical plans, or those who live in the US where I’ve heard there are a lot of things that aren’t covered the same way that they are here in Canada.
Today marks 1 year since Rainbow was diagnosed with Type 1 Diabetes. So, what goes on in the life of a kid that lives with T1D? Well, the first thing we learned is that there is seldom a ‘typical’ day. Its a constantly changing thing and there isn’t a magic formula to make sure that everything will always work the same way.
I wanted to share a little bit about the few weeks leading up to Rainbow being diagnosed with Type 1 Diabetes as well as soon afterwards.
We are soon approaching the one year ‘diaversary’ and so we often think back on what happened. We also have had friends ask about how we found out and what symptoms she had.
I think Rainbow is going through a bit of diabetic burnout lately. Finger pokes hurt more, insulin injections hurt more, everything seems to be more difficult.
I’m sure it’s just a stage she is going through, and I feel so bad for her. I hope it will pass soon.
There have been many advancements over the years relating to the treatment and management of type 1 diabetes, but when it comes to how Ontario schools deal with the disease, they seem to be a long ways behind.
Early on when Rainbow was diagnosed food was one of the things we struggled with the most. Obviously the whole thing was overwhelming, but food seemed to be extra difficult.
Living with type 1 diabetes (T1D) is a 24/7 job – people must constantly think about how they are managing the disease.
– JDRF Canada (http://www.jdrf.ca/our-research/treat/)
Well, here we go!
Thank you for those of you who have stumbled onto this blog. I hope you find it full of information and emotion.
I want to introduce you to my daughter. I will refer to her as “Rainbow” throughout this blog to protect her privacy.